Calm in the Eye of the Storm


Regular followers of this blog know that I’m traveling at present. I’m far from home visiting family for several weeks. Seeing people I haven’t seen in a very long time has been good, but it’s noisy.

I’m staying at my parents’ house and close to my sister. They like to watch television, and they actually leave it on constantly. I have written about my difficulty with television viewing here, here, and here. Simply put, I can’t watch. It flips a switch in my brain that causes me anxiety. I can’t explain it.

I have mostly dealt with the constant bombarding of television by moving into other rooms. It is not acceptable though. I’m cut off from communicating with family members I love.

I have made it through a couple of shows much to my surprise. They were lighthearted ones about cooking and home repair.

As I sit typing this post, there is a television playing in the next room, and I’m uncomfortable.

I’m keeping calm using a number of techniques:

  • Walking to another room
  • Deep breathing
  • Concentrating on my smart phone
  • Meditating in another room

I wish I could say I read, but I can’t concentrate when the television is on in the house. It’s quite maddening.

I do have to say that before my job training and the tools it gave me, this vacation would have set me on edge. I am remaining calm.

I am also getting along well with my loved ones, which would also not be the case for much of the past. Today, I have ways to help myself.

There is much too much write about, and I am afraid it must wait. I have some fun to go and participate in.

Coping with Anxiety


Yesterday was not an easy one for me. It was busy with emails flying about and doctor appointments and phone calls. The emails were unfortunately very confrontational, and they caused me a lot of anxiety.

Over the years of therapy I’ve been grateful to have, I’ve come to recognize negative emotions in my body right from the very beginning. For me, they start in my stomach. When I feel it churning or burning, I know that I’m experiencing anxiety or fear. When my chest tightens, then I’ve already missed the early warning signs, and the situation grew. If my face muscles clench or I have a headache, then things are out of control.

Thankfully yesterday, I caught my emotions while they were still in my stomach. It was extremely unpleasant, and I was relieved to have two appointments with health professionals. I saw my psychiatric prescribing nurse practitioner and my psychologist. Both are very competent women with many years in their fields, and I trust them fully.

The nurse practitioner and I had a good opportunity to discuss the situation, and she had some great feedback. She suggested that I begin to disengage from the volunteer organization that I spend so much time and energy giving to. She didn’t tell me to quit, but to let others in the group step up and do much of the work. I have been doing this since the beginning of the year, and I’m continuing it.

My psychologist had even more concrete ideas about easing the trouble causing my upset stomach. I had been insulted by one conversaion, and she suggested I write a very short note to the friend who had hurt me. I did that. I wrote clearly that my feelings were hurt. I did not write in anger. I did not express any either. I stated simply what words hurt me. Just discussing the idea of writing the note eased my churning stomach. Actually doing it and hitting the send button on my computer gave me more satisfaction. Later, I received a simple and heartfelt apology. All was well.

My psychologist paid me a great compliment. When I began counseling with her many years ago, it would take us many sessions to dig up my emotions. Yesterday, I entered her office and immediately explained my upset stomach and what was causing it. We came to a good conclusion, and I followed through. All that was accomplished in one sitting.

I have learned to pay attention to my body. It doesn’t lie to me. If something is wrong in my environment or with a situation that I can’t put my finger on, I can trust the sensations my body is giving me. I did not learn this overnight. It took many years, and I am still perfecting it. I will always be a work in progress.

Anxiety is awful. It robs us of clear thinking and overall enjoyment of life. Causes of anxiety are as numerous as grains of sand on the beach. I used to be terribly frightened to drive in parking lots. Life is not simple, and I needed a coping mechanism to allow me to park with minimal fear and greatest safety. I learned to plot my course. I visualized entering the parking lot from the same spot and turning down the same lane each time. My decision was to park in the first available stall regardless of its distance from the store’s entrance.

It worked. I learned to practice this visualizing and planning technique with many other situations in my life. Whatever gave me fear would be met by clear thinking and discussions with caregivers and planning.

I am not alone today. I have people who care about my success at daily living. They help, and I am learning to accept help.

The Jitters


Bipolar disorder is a disease, and I can really feel it today. I am dis-eased. To put it simply, I’m uneasy. I’ve got too many irons in the fire, as it were. I’ve got too much going on.

I am leaving for a long trip in a week. I’m flying far and staying with my aging parents for three weeks. We’re also having a family reunion while I’m there. I am looking forward to the trip, but it does cause me anxiety. I am going to be revealing my sexual orientation to many of them for the first time. That’s enough to make anybody nervous.

At the same time, I have heard from the bureaucrats in charge of my internship placement that things are looking up. I should be meeting with the head of a mental health clinic here before I fly away. It will be a simple meeting and less than a formal interview. Still, I’m nervous about it.

My car needs some repairs. One required the mechanic to order a part, and we’ve been waiting for it to arrive for three months. The piece arrived, but the mechanic has not picked it up, and the repairs are delayed, and my mind is spinning.

I spoke to my mother about bringing an old laptop computer to give them. It would make sharing pictures infinitely easier. She agreed much to my surprise. I spent a lot of time getting it cleaned of all my old things that are unneeded. I’ve made it into a very simple-to-use machine really meant for the easiest tasks only. I got them an email account, and now, when I get there, we’ll only have to find them an Internet service provider. Hopefully, that will prove simple.

My stomach is churning. I can hear ringing in my ears. My feet want to dance under the desk. I have the jitters.

I am reminded that this, too, shall pass.

Breathe. Just keep breathing, and do one thing at a time.

I Still Can’t Watch Television


Nothing has changed since I first reported my disability in regards to watching television and followed up later. I still can’t watch.

My daughters brought a DVD of a popular movie to watch last weekend. I helped them put it in the player and switch it on. I immediately had to leave. The machine repels me. It signals my brain and switches off my ability to sit comfortably. I hid in my room and paced the floor simply knowing it was playing. I emerged a couple of times to stand and watch briefly, but I always retreated to the safety of my room.

Over the past couple of years, I have talked to numerous other people with bipolar disorder, and they often report the same experience. It’s truly mystifying.

I noticed several years ago this discomfort was not strictly limited to the television. I also intensely dislike videos on the Internet and movies at the theater. My dearest friend sends me links to humorous videos, and I lie. I tell her I watched them, but I don’t. I will often click the link to see the title, but I will quickly turn it off.

I quite simply can’t sit through visual stimulation from a video source.

A good friend once told me I was missing nothing, but this discomfort is something more. It is a true disability. When the television is on in the house, I must pace. My mind races, and I can’t be calm.

I want to write that it’s bizarre, but I don’t want to demean me in any way. This disability hampers my enjoyment of life.

It’s not an inability to concentrate. I can write entries on this blog, and that exercise requires time and effort.

It has nothing to do with the flickering television tube since my unit is a new high-definition model. The computer screen, too, is HD. There is something about receiving stimulation from video that is inherently disconcerting.

Movies are a chore, and I turn down dates with friends to attend. If there is a particular one I really want to see, I often fortify my mind by taking an extremely low dose of a sedative beforehand.

I have been this way for a very long time. It’s been decades since I was able to enjoy a television show. I would like it to change. From what I can surmise, watching television is relaxing and makes people laugh. I’m excluded from that pleasure.

Emotional Sponge


A dear friend called me this morning quite angry about a situation. I was taken aback by her words. She was not angry at me but at a person we both know, and she was fuming.

I first tried to understand her anger, and I’m still unclear about the origins of her outburst today. What was immediately clear to me was my own anxiety. Her words caused my stomach to churn and my mind to fog.

Next, I stated my perception of the events in order to diffuse her temper and offered solutions we could both pursue to work through the matter at hand. It had the desired effect; she calmed down. We agreed on a course of action, and we are starting it today.

Is the problem solved? Yes.

Am I feeling better? No.

My stomach is just beginning to settle two hours after the phone call. My friend’s anger infiltrated me and has not dissipated. Frankly, I’m a mess. I’m not the type to cry or act out in other ways when I’m emotionally upset. I bottle it up inside. It’s unhealthy, but I’m much better at displaying my emotions today than I was ten years ago.

I also have an unhealthy habit of incorporating the emotions of people around me. Others’ little anxieties can become monumental to me. It’s awful really, and I don’t know how to stop.

I recognize where my responsibilities are and what I can control. However, that realization does not negate this emotional turmoil seeping into my pores and mind. I am using calming techniques I learned at the job training I recently completed. I’m breathing slowly and deeply. I’ve distracted my mind by following up on the ideas my angry friend and I decided on. I’m writing here. I am carrying on with my day.

Still, I feel like I’ve been hit in the stomach. This incident will be something to discuss with my therapist.

Funerals, Memorials, Death, on and on


Clouds

I’m thinking about my dead friend and past lover. His memorial service was yesterday. It was lovely, being held in a small theater space where he had performed and helped out backstage.

Another friend provided pictures. They were very large and easily seen from every seat. There were lit candles, and flowers strewn about the tables and floor.

My heart is quite heavy writing these words.

A friend spoke eloquently about the kind man who chose to leave us so soon. Colleagues from his work shared their grief, and a regular of the theater spoke graciously of his last role. The director of that show brought a prop used by the departed man. He told us how he and my former lover drove the streets of our town singing with each other, and then he sang a hymn.

The father of the deceased spoke about the boy he had been and read a letter from a life-long friend.

I sat.

We all sang a group song, which I joined.

I returned home and distracted myself with mindless browsing on the Internet. I wrote an entry on this blog. I read other blogs. I chatted online with a distant friend.

This morning, I have been harassed by a fly. No amount of hand waving chases it away, and my mind – my easily amused mind – assumes it is the ghost come back.

Yet, I need no ghosts. I have text messages we sent one another to pour over. There’s even a picture of him. Our flirtations are right there in little bubbles. They are short bursts of yearning with a mixture of silly faces made from punctuation marks.

And there’s a long message from me telling him our sexual relationship was over, imploring him to seek care for his bipolar disorder. Quickly following that one were his questions, followed by my silence.

Today, I hear birdsong outside my cottage. Music plays over my computer. Cars rumble by on the street. A dog barks. There is no silence.

I sit.

I play no what-if games. I am simply sad. My heart aches.

Suicide is not chosen; it happens when pain exceeds resources for coping with pain.” My friend hid great pain. His questioning eyes and smile masked a soul full of angst.

Now, I’m left with pain, but it will pass. Time heals.

My friend is dead. I am here.

Water

I Braved the Movie Theater


I have written in this blog about not being able to watch television for unknown reasons. It makes my brain twitch uncomfortably. I have avoided movies for the same reason. My brain throws a switch that makes my skull itchy inside. (You can find the blog entries by typing “I can’t watch TV” in the little search window on the right.) The crowds in movie theaters are also a deterrent.

I have seen three movies in the last month. It’s been amazing. I had to practice some deep breathing at points during each one, but I made it through. Last night was the most difficult. I saw Silver Linings Playbook, a movie about a bipolar man and his budding relationship with a troubled woman.

The movie begins with words on the screen announcing the upcoming scene as taking place in a psychiatric hospital. I tensed instantly. A group therapy circle unfolded on the screen with someone speaking gibberish about his hair. Another patient sat in his chair but had physical tics. The lead actor was composed but spouting loudly about finding good things in bad circumstances.

The movie twists and turns through the life of the lead actor. He moves back to his parents’ house, and immediately begins to obsess about his estranged wife. He meets an interesting, troubled woman, and they begin seeing each other. Their relationship revolves around his learning to dance. There are scenes finding the man up all night pouring through books only to toss them through a closed window into the street. He wakes his parents at odd hours to rant about wild things. He jogs a lot. The pair spark off each other, though their relationship remains platonic since the man insists he’s still married.

Some points of the movie were particularly wrenching for me to watch. When the lead actor maniacally reads, I was reminded of myself engrossed in books all day long. A crowd encircles the man at one point, and I found my heart pounding in real fear. I have been in the middle of crowded department stores and had to leave to breathe. He went on a painful, angry hunt for his wedding video, and I understood the drive, the single-minded mania. I have been in the situation where I had to accomplish a minor task at all costs and was thwarted.

There was quite a bit of violence in the movie. I’m very lucky that I’m not given to violent outbursts. I withdraw inwardly and use a great deal of negative self-talk.

The movie talked a lot about medication, and the lead character refused to take any. Some of his more egregious explosions prompted him to take medication, but the subject was treated poorly. Regular readers here know I am a strong advocate for taking medication to treat bipolar illness. I only speak for myself, but there’s no amount of prayer or meditation, no distance of running or walking, nor any length of talk-therapy or doctor visits that can control the hallucinations, the rapid thinking, or the burning brain. I need medicine. It’s plain and simple.

The movie ended happily. The boy got the girl. There was no hint of disability. All was right with the world, and I call, “Bullshit.” I’ve been manic about love in the past. If a relationship would fix me, I would be on every dating site around. People can’t fix me. If a relationship could fix the lead character in the movie, then why couldn’t his loving parents help?

Bipolar illness is tricky. I appreciate this cinematic portrayal. I intend to get the book and see if it may be different. I wish my happy ending would be so simple. I’d pay $10 for that.

Finding Stability


Bipolar illness is — I’m sorry for the cliche — a roller coaster. There are periods of slower ratcheting up to highs that catapult a sufferer into the depths. The rush of the ride provides momentary exhilaration but is always followed by the hollow feeling of the pits that drag the stomach down. What’s more, the person with the illness doesn’t realize it’s possible to live without the constant highs and lows.

When manic, I am exuberant. Colors are brighter. My nose is more sensitive to anything around. I want to hear words of praise for whatever I might be engaged in. I want music, and interestingly, it can be quiet and soothing. It doesn’t have to be raucous and loud. I want to eat. I like spicy food or the flood of good chocolate melting around my mouth or a piece of crisp toast flooded with ever-so-slightly-salty butter. And I want hugs. Touch becomes important. Clothes have weight, and I feel them. I don’t just dress. I adorn myself.

Depression slows the whole organism. Senses become dull. Simple routines are hurdles to overcome. The example for me is brushing my teeth. When I find I neglect that small chore, I know I’m sliding down the slope. Most importantly, my mind turns on itself.

Negative thoughts abound. They are present on awakening. I hear them when I look in the mirror. Turning the corner from the living room into the hallway, they bounce to the front of my mind. It’s not something that can be battled with affirmations. If reciting happy ideas would rid me of these horrendous voices, I would never have had to endure them even once.

In my eleven years since I was diagnosed bipolar type one, I have been hospitalized four times for psychotic breaks, suicide attempts, and suicidal thoughts. A person isn’t admitted to the hospital for biting his nails. I applied for and now receive government benefits that provide me a means to live. I cannot work a normal job. Government benefits for mental illness are notoriously hard to come by and require a long wait. Mine came in a short six months revealing a bit of something about my case.

My distant past was fueled by alcohol, which ceased to be a remedy for me a very long time ago. Once that fog lifted, mental illness rushed to the foreground. Stress on almost any level stops me in my tracks nowadays. If positive thinking is not enough, if prayer is not the answer, if herbal remedies won’t suffice, where then is the fix to the conundrum?

Happily, it’s in a mixture of modern medicine, vigilant self-help, and heavy reliance on a tried and true network of support. I rely on medicine to help regulate the highs and lows of my condition. It works. It’s been proven. I know in my experience that taking medication for bipolar illness far outweighs the alternative. I help me by practicing some simple strategies for coping with the extremes. I try to remain logical when I’m manic. I vociferously question those negative voices that hound me. I exercise, which may be one of the most important components of all. I meditate. It’s not a formal religious ceremony. It’s something that centers me and gives me a safe place to go in a troubled mind.

Then there’s therapy. After 26 years of it, I’m sold on its benefits. I get the advantage of sitting with a professional who is not emotionally attached to my situations and hearing sound words of help and solace and encouragement and even chastisement but never judgement.

I’ve come a very long way when I look back over the years. I’ve survived self-hatred and self-loathing that have come close to killing me on a number of occasions. I’ve rid myself of fears that spotted the inside of my eyelids with angry points of lights. I’m continuing to work on filling my life with substance and meaning.

I am an active participant in my own existence today.

Overbearing Emotions


It’s a sad day for many. A massacre occurred at an elementary school in Connecticut in the U.S. Many small children lost their lives, and many brave adults did, too. As soon as I heard, I shut off the news on my computer and limited my intake. I am sensitive to these tragedies, and they have a way of needling into my thoughts and taking center stage.

Despite the measures, I wept for a long while and felt anguish and helplessness. My mind returned again and again to the unbearable loss.

Thankfully, I had an appointment scheduled with my psychiatric nurse practitioner, so I knew I would have an opportunity to discuss my emotions regarding the horrifying news. I arrived early and asked if she’d heard the story. She had.

***

I don’t trust my emotions. I’m unable at times to distinguish how I feel, if anything at all. I’m fighting back tears as I write this, and I don’t know what the tears are for or why I’m fighting.

***

The nurse informed me that people with a mental illness like mine will often repress emotions. “Little incidents,” she said, “that I wouldn’t even spend a split second thinking about become mountainous obstacles in the lives of my bipolar, depressed, and schizophrenic patients.” Due to this, we often shut emotions off only to have them resurface in odd ways.

I found myself pacing my little house several days this past week. On several occasions, I wandered back and forth along a worn path from room to room. When it dawned on me I was walking aimlessly, I didn’t stop. I tried to remember what my thoughts were while pacing, but it was no good. The thoughts had vanished. My memory was faulty. The nurse informed me this was a classic example of repression.

My sleep has been troubled, too. I wake after a few hours and then can’t get back to sleep until several more hours pass.

And there are the dreams. One I call “The Actor’s Nightmare,” in which I find myself on a bare stage where someone is just about to raise the curtain. I don’t know my lines. There is no set. I’m wearing no costume. There are no props or even other performers. No one else is backstage with me, but I can hear people in front of the curtain talking to the audience announcing the beginning of the show. I can’t get their attention to tell them about the emptiness they’re about to expose the audience to. I find a kind of bag full of papers that I begin to fling about so that I can take the empty bag on as a prop.

Emptiness. Lack of control.

There’s the dream of which I only remember the ending. I have lit a cigarette lighter, and I’m inhaling the flame to burn away the rotten parts of me. My lungs are engulfed by the blaze. I have a desperate need to burn what is unworthy.

Self-loathing.

I saw my therapist yesterday, and we discussed the dreams. We talked more about the sexual healing I’ve been working on. She mentioned love.

“How far back do you have to go to an age when you know you were loved?”

“The cradle,” I replied.

She displayed no surprise, but I was. My answer was quick and certain, so we spent time imagining caring for a “baby me.” I held the baby close. I cooed to him. I rocked him. I cuddled him.

We went through the steps of changing a messy diaper, and I got to express love in all circumstances with a baby’s needs.

***

Healing is slow.

***

I cried today for the lost children in Connecticut. My heart aches now for them, but then my heart aches much of the time. I sent out a prayer to whatever it was that set this universe whirling, asking for healing and solace for their families and me.

I Survived the Trip


Doing things one step at a time proved the answer to my anxiety about my weekend away. I made it through security both going and returning. I sat in crowded vehicles in very heavy traffic. I maneuvered through crowded streets and slept in strange beds. I was in odd places and didn’t panic. In fact, I didn’t have a panic attack once.

I did all this with less than the normal amount of the medication I take for anxiety. If there’s one thing I learned from this short trip, it’s to double check the number of pills I take with me. I took too few, but I made it through with a bit to spare.

I came away from the weekend with more than that. I spent the time in close contact with family and enjoyed myself. I got to experience a grand, Broadway-style musical, and it reinvigorated my passion for something I love: theater. I’d been so tired for a long time, and now I’m excited again. I love making theater happen. Being in it and working behind the scenes brings me life.

I’m home now in my little town, dreaming of how to make theater happen. We can’t bring Broadway here, but we can have fun and learn to make the best shows possible. We can grow to be better at acting and building the technical aspects of theater.

I face much of life looking through a veil worried about my emotions. Is this elation the beginning of a manic phase? Will this melancholy lead to depression and all its wretchedness? I can’t let my emotions run rampant. They will literally kill me.

Still, I can enjoy myself. I can manage difficult situations. I have tools that enable me to live stably. I have people working on my behalf to make my life manageable.

I am working to make my life manageable.